Cablevision’s support of The Lustgarten Foundation ensures that 100% of every donation goes directly to pancreatic cancer research.

Caregiver Resources

Managing Practical Concerns

 

Cancer Survival Toolbox
This self-learn audio program is available free-of-charge from the National Coalition for Cancer Survivorship (NCCS). The program is designed to cover topics or skills that can assist individuals with cancer in meeting the challenges of their illness. It is appropriate for individuals facing any stage of the cancer disease, and includes helpful information for family members or caregivers of cancer patients.

CaringBridge
CaringBridge offers free, private Web sites for people facing a serious health event. Using a CaringBridge Web page, patients and caregivers can share updates, post photos, and receive messages of hope and encouragement through a guestbook.

Family Caregiving 101
This site provides caregivers with the basic tools, skills and information they need to protect their own physical and mental health while they provide high quality care for loved ones. The site provides assistance, answers, ideas and helpful advice.

Family Caregiver Alliance
1-800-445-8106
A public voice for caregivers, FCA offers practical tools and information, support services and other resources.

Lotsa Helping Hands
Lotsa Helping Hands is a private, web-based caregiving coordination service that allows family, friends, neighbors, and colleagues to create a community to assist a family caregiver with the daily tasks that become a challenge during a medical crisis, caregiver exhaustion, etc. Caregivers benefit from the gifts of much needed help, emotional support, and peace of mind, while volunteers find meaning in giving back to those in need.

Support & Information 

CancerNet
The consumer Web site of American Society of Clinical Oncology (ASCO), People Living With Cancer is designed to help patients and their families find accurate, timely, and oncologist-approved information about cancer. In addition to providing detailed information, the site includes access to a medical dictionary and drug database, message boards and opportunities to participate in live chats with cancer experts.

Cancer Supportive Care
This comprehensive guide for patients and their families, based on the book Cancer Supportive Care by Ernest H. Rosenbaum, M.D. and Isadora R. Rosenbaum, M.A, is made available on-line from the Cancer Supportive Care Program.

National Family Caregivers Association
1-800-896-3650

NFCA educates, supports, empowers and speaks up for the more than 65 million Americans who care for loved ones with a chronic illness or disability or the frailties of old age. NFCA reaches across the boundaries of diagnoses, relationships and life stages to help transform family caregivers' lives by removing barriers to health and well-being.

Well Spouse Association
1-800-838-0879

The Well Spouse Association is a nonprofit membership organization that advocates for and addresses the needs of individuals caring for a chronically ill and/or disabled spouse/partner.

Home Care & Hospice

Cancer Support Community
Helpline: 1-800-658-8898
Multilingual Helpline: 1-877-658-8896

Caring Connections provides free resources and information to help people make decisions about end-of-life care/services before a crisis.

NCI Fact Sheet: Home Care for Cancer Patients

Includes information and resources for identifying home care services for individuals with cancer.

National Association for Home Care & Hospice 

NAHC produces a consumer guide, How to Choose a Home Care Provider: A Consumer's Guide.

Hospice Foundation of America

 

National Hospice and Palliative Care Organization
1-800-338-8619

Hospice Net
Information for patients and caregivers on end-of-life issues and bereavement.

Next Step in Care
Comprehensive information and advice to help family caregivers plan various transitions for patients.

New Issue!

Interview with an Expert

Identifying a Treatment Doctor & Facility

Patient & Caregiver Resource

Create a free, private Web site to share updates with family & friends.

Hereditary Pancreatic Cancer

Hereditary Pancreatic Cancer

Learn about the hereditary form of pancreatic cancer.

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The Lustgarten Foundation
1111 Stewart Avenue, Bethpage, New York 11714
Toll Free: 1-866-789-1000 P: 516-803-2304 F: 516-803-2303

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