Cablevision’s support of The Lustgarten Foundation ensures that 100% of every donation goes directly to pancreatic cancer research.

Reading Room

General Information

100 Questions and Answers About Pancreatic Cancer
by Eileen O'Reilly, MD & Joanne Frankel Kelvin, RN, MSN
ISBN 0-7637-2057-7

Clinical Trials:  What Patients and Healthy Volunteers Need to Know
By Lorna Speid, Ph.D.
ISBN:  978-0-19-973416-0
Published by Oxford University Press

Informed Consent: The Consumer's Guide to the Risks & Benefits of Volunteering for Clinical Trials
by Kenneth Getz & Deborah Borfitz
ISBN 1-930624-09-3

A Helping Hand: The Resource Guide for People With Cancer
by CancerCare, Inc.
Resource Guide and Connect Booklets are available online at www.cancercare.org and by request at 1-800-813-4673.

CURE Magazine
CURE Magazine offers in-depth information on cancer and supportive care to patients and families. The magazine is available by subscription (at no cost to cancer patients, survivors and caregivers), and features various online articles and resource listings.

CR Magazine
CR is an award-winning magazine published by the American Association for Cancer Research, which covers cancer policy, advocacy and research developments in a language that everyone can understand.

Coping/Support

The Ride of My LIfe
Written by: Bob Brown
Take a deep breath and sit down with The Ride of My Life - A Fight to Survive Pancreatic Cancer. This story is the perfect prescription in the face of a serious illness: guidance, inspiration, humor, and best of all - HOPE.

A World without Cancer
The Making of a New Cure and the Real Promise of Prevention
Written by: Margaret I. Cuomo, MD

A provocative and surprising investigation into the ways that profit, personal ambition, and politics obstruct real progress in the war on cancer. Available where books and e-books are sold
View the Prevention Article

Coping With Cancer Magazine
America's consumer magazine for people whose lives have been touched by cancer(TM). Now in its 20th year of providing knowledge, hope and inspiration, its readers include cancer patients (survivors) and their families, caregivers, healthcare teams and support group leaders.

Its' OK Not To Be OK
How to Live Through and Overcome Adversity During a Crisis
by Mark D. Lerner, Ph.D.
ISBN 978-0-9772818-2-4

Coping With Cancer on the East End
by Fighting Chance, Inc.
Published in partnership with CancerCare, this Guide offers information on resources related to counseling, education and financial assistance. Available free by request at 631-725-4646.

"Jim's Journey"
The Journal of Dr. James P. Snyder II, written during his year-long battle with pancreatic cancer.
Jim was diagnosed with pancreatic cancer on November 6, 2009, and was given three to six months to live. His tumor was inoperable. He accepted this challenge with a positive attitude, a great sense of humor, and a lot of faith. In order to help him process his experience, Jim decided he would journal and share it via email with family and close friends. As more and more people heard about Jim's journal and how inspiring it was, he began to receive requests to be added to his mailing list. The journal began with a distribution list of about 25 family members and close friends. Thirteen months later it was being read by more than 300 people.
Jim's earthly journey ended on Christmas Eve, 2010. It was his hope and that of his family that the journal he authored would perhaps give others who are dealing with cancer, either personally or with a loved one, inspiration and encouragement to help in their journey. It also has much to say to anyone, as it presents a glimpse into the mind and spirit of one individual who lived every day to the fullest.
To request a copy of "Jim's Journey" please contact: snyder.jimsjourney@gmail.com
(net proceeds from this book will go towards pancreatic cancer research)

The Last Kiss: A story of Love, Joy and Loss
By: Leslie Brody
Leslie Brody, a newspaper reporter and mother of two, thought her life was finally heading in the right direction when she married Elliot, a romantic, funny and brilliant editor with three children of his own. But six years after their wedding, they learned that Elliot, only 55, had pancreatic cancer - and would be lucky to live for a year or two.

With a journalist's eye for intimate detail, Leslie shows how they made the very most of the time they had left together. Told with heart, humor and compelling immediacy, The Last Kiss is a love story about the life-affirming power of a passionate marriage, the importance of loyal friends, and the resilience of children growing up through one of life's harshest trials.

This is the most important story she has ever told.

Dusk and Summer
By: Joseph Pinto
"My journey started six years ago after I lost my father to ‪pancreatic cancer‬. I honored his life the only way I knew – I wrote for him. This is not a biography; this is a fable, a testament to love, to faith. Mine is a story that takes you to the depths of the unknown sea; where you’ll discover the secrets of a bared soul. And more…"
Proceeds from the book will benefit the Lustgarten Foundation.

Until We Meet Again
Story by Susan Jones/Illustrations by Shirley Antak
Children's book designed to help kids cope with anticipated grief and/or the loss of a loved one. Between one winsome grandfather and one lucky boy are keepsakes of the heart...memories made by the two of them for all time. But their time together is coming to an end. With insight and tenderness, author Susan Jones tells the story of what comes next for a little boy who discovers that memories aren't just about what happened yesterday, but what we do everyday to make the most of time with the people we love.

Cancer Changes Some Things, But Not Everything
Story by Dana Romanello-Flynn/Illustrations by Marianne Ganter
Children's book that shows what day to day life can be like from the child of a parent or grandparent with pancreatic cancer.The book addresses a variety of effects related to cancer treatment of a mother through her daughter’s eyes, and presents that information in a way that welcomes the child to be part of their parent(s) journey instead of fearing it. "Cancer can change the way someone looks and feels; it can even change some of the things someone does. But there is one thing that cancer can never change: cancer can never change love."
Proceeds from the book will benefit the Lustgarten Foundation.

The Ripple Effect: How a Positive Attitude and a Caring Community Helped Save My Life
"The author, Steven Lewis, in superb life-long health, was diagnosed with pancreatic cancer, a disease with a survival rate of only 5%. In spite of this, Steven and his wife struggled to achieve and deliberately maintain an extremely positive attitude. This choice started a “ripple effect” that created an exceptionally caring and upbeat community of family, relatives and friends and enabled this community to return even more positive energy to Steven. The story became even more intense when Steven endured a second bout of pancreatic cancer that metastasized to his liver. Surviving a second bout of pancreatic cancer is so rare that no statistics are kept. Today, Steven is cancer free, in excellent health and works out strenuously."

Wanterfall: A Practical Approach to Understanding and Healing of Emotions of Everyday Life
by Dr. Gordon Coates
Practical guide to understanding and dealing with emotions based on Dr. Coates' 35-year career in hospice and general medicine.

No Such Thing as a Bad Day
A Memoir by Hamilton Jordan
ISBN 0743419200

The Cancer Survival Toolbox(TM)
This self-learn audio program is available free from the National Coalition for Cancer Survivorship (NCCS). The program covers topics or skills that can assist individuals with cancer in meeting the challenges of their illness. It is appropriate for individuals facing any stage of the cancer disease, and includes helpful information for family members or caregivers of cancer patients. Visit the Web site of NCCS at www.canceradvocacy.org

Living in Paretheses: Cancer and Who You Are
Written by: Rose Rappaport
"I am glad to have been permitted to learn to live with, rather than simply die from, cancer," remarks Rose Rappaport in one passage of this lucid, unsentimental, and transcendent collection of essays on her sojourn with the illness that eventually took her life. "Mostly I am glad to measure my life, not in terms of what it once was or what I might have wished it to be, but of how wonderful it is now." It was a transformative experience for her that shed profound light on the changeable meanings of work, love, friendship, and growth. The essays she left will as surely alter anyone fortunate enough to read them.

Proceedes from the sale of this book will be donated to The Lustgarten Foundation.
Available at Barnes and Noble and Amazon

Nutrition

The Cancer Survival Cookbook: 200 Quick and Easy Recipes with Helpful Eating Hints
by Donna Weihofen RD, MS, with Christina Marino, MD, MPH
Includes advice for overcoming specific eating challenges; a section on herbal remedies. Recipes are simple and offer a nice variety of choices.
ISBN 0471444642

Betty Crocker's Living with Cancer Cookbook
ISBN 0764565494
Includes coping with side effects, energy-boosting breakfasts, fatigue-fighting snacks, 20-minute main dishes, make-ahead meals, family-pleasing main dishes, comforting side dishes and treat-yourself desserts. Each recipe includes a key to which treatment side effects it will help control (nausea, mouth sores, diarrhea and constipation).

 

 

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