Find the Help You Need
Managing pancreatic cancer requires a wealth of information. This comprehensive list of organizations and services will help patients and caregivers navigate this challenging disease.
Cancer Organizations and Associations
The National Coalition for Cancer Survivorship (NCCS)
Cancer advocacy group that promotes policy change to ensure quality cancer care.
Clinical Trial Search and Services
Many clinical trials are currently being conducted on pancreatic cancer. While we encourage you to use our clinical trial finder at Emerging Med, other clinical trial finders include:
Pancreatic Cancer Collective Supported Clinical Trials
National Cancer Institute at the National Institutes of Health
Phone: 1.800.4.CANCER (1.800.422.6237)
Hospice and Palliative Care
American Academy of Hospice and Palliative Medicine
Professional association for hospice and palliative medicine.
Hospice Care of America
Medications, medical equipment, counseling and innovative symptom management in addition to assistance with comfort, general support, personal care, encouragement and relief for caregivers.
Insurance and Financial Issues
The Assistance Fund
An independent charitable patient assistance organization that helps patients and families facing high medical out-of-pocket costs, has a copay assistance program for people living with pancreatic cancer. The program is designed to help eligible individuals pay for their out-of-pocket medical expenses related to pancreatic cancer, such as copays, deductibles, and coinsurance.
Loyola Law School, Los Angeles
Free, confidential information and resources on cancer-related legal issues to patients, families, friends, employers, healthcare professionals, and others.
Assistance Hotline: 1.866.THE.CLRC (1.866.843.2572)
MoneyGeek.com: Managing Finances and Covering the Mortgage During Cancer Treatment
Written by Deb Gordon, author of The Health Care Consumer’s Manifesto
National Association of Community Health Centers, Inc.®
Community Health Centers serve as the primary medical home for more than 27 million people in 10,400 rural and urban communities across America.
Information for people with cancer and their families and caregivers from the American Society of Clinical Oncology.
Coping With Cancer Magazine
Easy-to-read magazine about coping with cancer.
Let’s Win! Pancreatic Cancer
Patients and caregivers share information about new, innovative pancreatic cancer treatments and learn about the latest research breakthroughs.
Medline Plus Health Information
Information from the National Library of Medicine written at the patient level.
Medical information and continuing education for clinicians.
Information for patients and healthcare providers written by oncologists.
Abramson Cancer Center of the University of Pennsylvania
3400 Spruce Street, 2 Donner
Philadelphia, PA 19104-4283
Clinical studies on MEDLINE and other related databases. In addition to brief abstracts from technical journals, PubMed offers frequently asked questions, news and clinical alerts.
The Cancer Letter
Cancer research and drug development.
Weekly medical publication on a variety of topics including oncology.
Counseling and support groups over the phone, online and in-person, educational workshops, publications and financial and co-payment assistance.
NCI’s LiveHelp Service
Specialists answer questions about cancer, clinical trials and the process of quitting smoking. LiveHelp is confidential and does not provide specific medical advice.
Pancreatic Cancer Connections
A partnership between the Lustgarten Foundation, Let’s Win! Pancreatic Cancer and Inspire, Pancreatic Cancer Connections is an easy-to-use, online support community where patients and their loved ones can communicate about pancreatic cancer with others on the same journey.
Travel and Housing Services
The Air Care Alliance
Nationwide association of humanitarian flying organizations. Members have safely flown over 24,000 patients to and from medical treatments.
Corporate Angel Network, Inc. (CAN®)
Charitable organization whose sole mission is to transport cancer patients to the hospital where they need to receive a specialized form of treatment.
Patient AirLift Services (PALS)
Arranges free air transportation for individuals requiring medical diagnosis, treatment or follow-up who cannot afford or are unable to fly commercially.
Healthcare Hospitality Network
Nationwide association of more than 200 nonprofit organizations that provide lodging and supportive services to patients and families with medical emergencies.
Patient Travel Referral Program
Information about charitable, long-distance medically-related transportation and referrals to sources of help available in the national charitable medical transportation network.
Apps and Webinars
Designed by doctors, patients and caregivers, Canceraid is the number one cancer app in the U.S., U.K. and Australia.
Webinar by Johns Hopkins
30-minute webinar which provides information about surgery, chemotherapy and immunotherapy.
Registries, Screening Centers and NCI-Designated Cancer Centers
Familial registries are powerful resources to gain a better understanding of pancreatic cancer. The following registries are set up to identify families in which multiple members have been diagnosed with pancreatic cancer. Researchers search for genes that may be the cause of pancreatic cancer. It is hoped that early detection methods and novel treatments will result from these efforts.
Contact: Chinedu Ukaegbu, MBBS, MPH
Indiana Familial Pancreatic Cancer Roster
Screening Centers and Programs
CAPS is for those considered at high risk for pancreatic cancer due to a family history or genetic mutation. Participants are offered genetic counseling and pancreatic screenings. that may include a combination of endoscopic ultrasonography, MRI, and CT scans. The CAPS study is taking place at eight institutions across the country. Contact information for each participating center can be found here.
MD Anderson Cancer Center
The Pancreatic Cancer Moonshot™ initiative includes methods to identify pancreatic cancer earlier and provide a multidisciplinary clinic for individuals at high risk of pancreatic cancer.
The Froedtert & the Medical College of Wisconsin Clinical Cancer Center
Greater Midwest Pancreatic Cancer Screening Clinic
Johns Hopkins University School of Medicine Sol Goldman Pancreatic Cancer Research Center
The National Familial Pancreas Tumor Registry (NFPTR) and the Multidisciplinary Pancreatic Cyst Program are programs of the Sol Goldman Pancreatic Cancer Research Center.
Cyst Program: 410.955.5800
New York-Presbyterian Hospital/Columbia University Medical Center
Muzzi Mirza Pancreatic Cancer Prevention and Genetics Program
Robert H. Lurie Comprehensive Cancer Center of Northwestern University
Gastrointestinal Cancer Prevention Clinic
University of Virginia Health System Emily Couric Clinical Cancer Center
High Risk Pancreatic Cancer Clinic
University of Washington Division of Gastroenterology
Familial Pancreatic Cancer & Surveillance
Gastroenterology Clinic at Harborview
This center is for patients with a strong family history of pancreatic cancer who are interested in surveillance.
Yale School of Medicine
Pancreas Disease Program
333 Cedar Street
New Haven, CT 06510
National Cancer Institute Designated Cancer Centers
The National Cancer Institute (NCI) is a federal agency for cancer research and training. The NCI Cancer Centers are recognized for scientific leadership and resources. The Comprehensive Cancer Center designation is reserved for those centers with the highest achievements in cancer research, clinical care, education, and community contributions. Studies show being treated at NCI-designated Comprehensive Cancer Centers leads to better survival and recovery rates due to the level of care, diverse oncology disciplines, subspecialty expertise and multidisciplinary teams as well as access to clinical trials.
The NCI recognizes 2 types of centers: *Cancer Centers and **Comprehensive Cancer Centers.
Each type of center has special characteristics and capabilities for organizing new programs of research that can take advantage of significant new findings and address timely research questions. It is important to note, however, that the terms Comprehensive Cancer Center and Cancer Center do not denote a difference in the quality of care provided to patients.
A list of these centers can also be found at www.cancer.gov/research/nci-role/cancer-centers or by calling 1.800.4.CANCER.
**University of Alabama at Birmingham Comprehensive Cancer Center
Toll-Free: 1.800.822.0933 (1.800.UAB.0933)
**UCSF Helen Diller Family Comprehensive Cancer Center
University of California at San Francisco
Appointments & Physician Referral Service: 1.888.689.8273
International Inquiries: 415.353.8489
DISTRICT OF COLUMBIA
*Indiana University Melvin and Bren Simon Cancer Center
Appointments & Referrals: 317.944.0920
**Marlene and Stewart Greenebaum Comprehensive Cancer Center
University of Maryland
Main and New Appointments: 410.328.7904
*David H. Koch Institute for Integrative Cancer Research at MIT
Massachusetts Institute of Technology
**University of Michigan Comprehensive Cancer Center
University of Michigan
Cancer Answer Line: 1.800.865.1125
**University of New Mexico Comprehensive Cancer Center
In New Mexico: 1.800.432.6806
**Comprehensive Cancer Center of Wake Forest University
**The University of Texas MD Anderson Cancer Center
**Harold C. Simmons Comprehensive Cancer Center
University of Texas Southwestern Medical Center
Phone: 214.645.HOPE (4673)
Toll-Free: 866.460.HOPE (4673)
**Fred Hutchinson/University of Washington Cancer Consortium
Fred Hutchinson Cancer Research Center
New patients/intake: 206.288.1024