Our Commitment to Privacy

Last updated 8/1/2022

The Lustgarten Foundation is committed to protecting your privacy. Our privacy policy addresses questions or concerns about the information collected through your digital, paper, or in-person engagement with the organization. The foundation respects the privacy of all our supporters, whether donors, members of our mailing lists, or visitors to our website. By using any of our services, communicating with the foundation, or providing information to the Lustgarten Foundation you are agreeing to this privacy policy. We are committed to being good steward of the data you entrust to us. If you have questions that are not answered below, please contact [email protected] – your email will be routed to the individual who can best address the question asked.

Information Collection

The Lustgarten Foundation collects information to support our mission to cure pancreatic cancer. Through our information collection, we can better understand our supporters’ interests and needs. Information collected by the Lustgarten Foundation will vary depending on the supporter’s interactions with the organization and its services.

We do not collect personally identifiable information from you unless you provide it to us voluntarily and knowingly. We do not require visitors to register or provide information to us to view the website. The Lustgarten Foundation only gathers personally identifiable information, such as names, addresses, zip/postal codes, email addresses, limited health information such as your relationship to pancreatic cancer, etc. when it is voluntarily submitted by a visitor – usually in conjunction with event registration or donation. Our website is not intended for children, and we do not knowingly collect data on children under the age of 13 unless necessary for event participation such as child registration for a Walk fundraiser. We comply with the federal Children’s Online Privacy Protection Act of 1998 (COPPA).

Contact Information and Preferences

We may request contact information such as name, email and mailing address, phone number, and contact preferences. We may use publicly available information and third-party services to supplement or ensure the accuracy of your contact information.

Demographic Information

We may request demographic information such as gender identity, race, ethnicity, marital status, geographic location, and language preferences. We may use publicly available information and third-party services to supplement or ensure the accuracy of your demographic information.

Health Information

We may request limited health information about you, such as your relationship with pancreatic cancer or other cancers, date of diagnosis, stage, current treatments, etc. This information may be used to assist you if you contact the Lustgarten Foundation seeking pancreatic cancer information or to request support from the foundation. We may use this information to let you know about special activities for patients, survivors, caregivers, and support networks. This health information may be transmitted electronically for the use, or the disclosures described in this privacy policy.

Financial Information

If you donate to the Lustgarten Foundation we will collect payment information to process your transaction. We may also collect relevant information such as the name of the employing company for a matching gift donation. We may use a third-party payment service to process payments made through the foundation’s services. We do not retain credit card numbers and rely on referenced or recurring transactions for subsequent processing of related transactions (refunds, monthly giving, etc).

Web Browsing Data

Our web server automatically recognizes non-personalized information through cookies, such as browser type, operating system, Lustgarten webpages you visit and links you click, IP address, time spent on the Lustgarten website, and the webpage that led you to the foundation’s website. We use this information to help diagnose problems with our website and servers, improve the content of our website, and follow visitor behavior patterns. We do not use cookies to find the identities of those visiting our website. You can disable and delete cookies from your browser settings which may impact parts of our site’s functionality. Additionally, some browsers and operating systems may disable cookies by default which may impact some site functionality.

Data Security

The Lustgarten Foundation is committed to protecting your privacy and the security of your personal information. We take all necessary steps to ensure that your data is kept private and protected from unauthorized use in agreement with this privacy policy. We incorporate industry-standard security measures to create services that are resistant to standard internet-based threats. All staff are trained on our privacy policy and have access to personal information on a strictly “need to know” basis.

If you have any reason to believe that your interaction with us is no longer secure, please contact [email protected] and we will review your concern right away.

Information Storage

The Lustgarten Foundation only retains data provided to us through our website for business purposes in support of our mission. Where applicable, the Lustgarten Foundation adheres to legally defined retention periods and limitations guiding the purpose for which data was collected and in accordance with any consent provided.

Information Sharing

The Lustgarten Foundation may share your information with like-minded organizations where partnership directly supports the foundation mission. We may share your information with third parties who are processing data on our behalf, these third parties are required to use data only as instructed and must agree to our privacy policy requirements. The Lustgarten Foundation may share donor names, mailing, and emailing addresses with other non-profit organizations. We do not share health-related data in connection with this list exchange.

How We Use Data

We may use personal information to respond to your inquiries and provide you with the information, resources, and services in response to your request. We may use personal information to help us better understand our supporters and to develop, evaluate, and improve our programs and services. We may use personal information to keep you informed about pancreatic cancer-related news, notify you of relevant upcoming events, and request voluntary or monetary contributions to our cause.

We perform regular data analysis to gain a better understanding of supporters and to improve our services to better support our mission. We may use certain contact information to verify your identity and/or contact you for the purpose of raising funds for the Lustgarten Foundation.

We may work with third-party services to target advertisements and outreach to you based on your preferences, in some cases combining data we collect from you through online cookies and other technologies with other identifiable and de-identified data. We may use third-party services to show you content-specific advertisements to you after you have used our services.

Accessing Your Data

Subject to applicable law, you may have the right to access any information we collect and keep about you, as well as request information on how your personal data has been used. This access is provided free of charge, however, if requests are deemed to be unfounded, excessive, or repetitive, Lustgarten Foundation is entitled to charge an administrative fee.

You have the right to withdraw consent for previous personal data collection at any time and without reason. Communications materials and activities may have already been deployed at the date of consent withdrawal and it can take several months to be fully removed from related communications streams.

You have the right to correct, erase, and supplement any information you have provided to us. This right to correct personal data extends to third parties of the Lustgarten Foundation. We will take reasonable steps to inform third parties, with whom we shared your data, of your data correction. You have the right to request that the Lustgarten Foundation refrains from processing your personal data if you believe the data to be inaccurate, unlawful to process, or do not want the Lustgarten Foundation to hold onto your data any longer.

You have the right to refuse to provide personal data to the Lustgarten Foundation. When exercising this right, you must understand that certain services provided by the Lustgarten Foundation may not be possible to provide.

You have the right to receive any personal data that the Lustgarten Foundation has collected.

To make a request please contact [email protected] – we will do our best to provide requested information as quickly as possible or to reach out with any clarifying questions if we have them.

This privacy policy will be updated, and the changes may alter the terms that you have previously agreed to. We recommend that you review the privacy policy regularly.

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