Resources - Lustgarten Foundation: Pancreatic Cancer Research


Find the Help You Need

Managing pancreatic cancer takes a wealth of information and resources. We’ve compiled a comprehensive list of organization and services which can help patients and caregivers navigate this challenging disease.   We encourage you to enlist the support of these great organizations and services that are available.

Cancer Organizations and Associations

American Cancer Society

General information, resources and statistics about all forms of cancer.
250 Williams Street NW
Atlanta, GA 30303
Phone: 1-800-227-2345

American College of Surgeons Commission on Cancer

Can help navigate the surgery process and assist in finding a surgeon.
Phone: 800-621-4111

National Cancer Institute (NCI)

A wealth of information including a patient hotline and clinical trial finder.
BG 9609 MSC 9760
9609 Medical Center Drive
Bethesda, MD 20892-9760
Phone: 1-800-422-6237

The National Coalition for Cancer Survivorship (NCCS)

Cancer advocacy group that promotes policy change to ensure quality cancer care.
8455 Colesville Road, Suite 930
Silver Spring, MD 20910
Phone: 877-622-7937
E-mail: [email protected]

The American Association for Cancer Research

The mission of the American Association for Cancer Research is to prevent and cure cancer through research, education, communication, and collaboration.
Phone: 215-440-9300

Clinical Trial Search and Services

Many clinical trials are currently being conducted on pancreatic cancer. While we encourage you to use our clinical trial finder at Emerging Med, other clinical trial finders include:

National Cancer Institute at the National Institutes of Health

Phone: 1-800-4-CANCER (1-800-422-6237)

CenterWatch Clinical Trials Listing Service™

Phone: 866-219-3440


Clara Health

Phone: 1-888-973-7445
Email: [email protected]

Government Agencies

U.S. Department of Veterans Affairs

Phone for VA Benefits: 1-800-827-1000
Phone for Healthcare Benefits: 1-877-222-8387


Phone: 1-800-MEDICARE (1-800-633-4227)

Social Security Administration

Phone: 1-800-772-1213

Hospice and Palliative Care

American Academy of Hospice and Palliative Medicine

Professional association for hospice and palliative medicine.
8735 West Higgins Road, Suite 300
Chicago, IL 60631

National Association for Home Care & Hospice

The National Association for Home Care & Hospice (NAHC) is the largest and most respected professional association representing the interests of chronically ill, disabled, and dying Americans of all ages and the caregivers who provide them with in-home health and hospice services. Provides some consumer information including a service provider directory. For more information:
228 Seventh Street, SE
Washington, DC 20003
Phone: 202-547-7424

National Hospice and Palliative Care Organization

The National Hospice and Palliative Care Organization (NHPCO) is the largest nonprofit membership organization representing hospice and palliative care programs and professionals in the United States. The organization is committed to improving end-of-life care and expanding access to hospice care with the goal of profoundly enhancing quality of life for people dying in America and their loved ones.
1731 King Street, Suite 100
Alexandria, VA 22314
Phone: 703-837-1500
Fax: 703-837-1233
E-mail: [email protected]

Hospice Care of America

Provides medications, medical equipment, counseling, and innovative symptom management in addition to assistance with comfort, general support, personal care, encouragement and relief for caregivers.
3815 N. Mulford Rd. #4
Rockford, IL 61114
Phone: 815-316-2700
Email: [email protected]

Insurance and Financial Issues

Loyola Law School, Los Angeles

Provides free, confidential information and resources on cancer-related legal issues to patients, families, friends, employers, healthcare professionals, and others. Callers can also be matched with volunteer attorneys and other professionals for additional legal information.
Cancer Legal Resource Center
919 Albany Street
Los Angeles, CA 90015-1211
Phone: 213-736-1000
Assistance Hotline: 1-866-THE-CLRC (1-866-843-2572)
E-mail: [email protected] Managing Finances and Covering the Mortgage During Cancer Treatment

Written by Deb Gordon, author of “The Health Care Consumer’s Manifesto,” the guide includes:

  • A sharable infographic summarizing the financial challenges of cancer survivors to share with audiences
  • An interview with Duke Cancer Institute’s Dr. Yousuf Zafar discussing financial toxicity and how patients can work with their clinicians to manage costs during treatment
  • A comprehensive list of financial resources for cancer patients and survivors covering help with housing, medical bills, and even groceries
  • Ways to manage your mortgage costs and increased medical expenses, including a look at various forms of insurance (health and disability) and ways to lower your housing costs
  • A list of housing resources to help patients get help including HUD and state-run programs

National Association of Community Health Centers, Inc.®

Community Health Centers serve as the primary medical home for more than 27 million people in 10,400 rural and urban communities across America.
7501 Wisconsin Avenue, Suite 1100W
Bethesda, MD 20814
Phone: 301-347-0400


NeedyMeds is a national non-profit organization that maintains a website of free information on programs that help people who can’t afford medications and healthcare costs. NeedyMeds also publishes information about resources for specific diseases. All of their information is accessible online, at no charge and without registration.
P.O. Box 219
Gloucester, MA 01931
Phone: 800-503-6897

Patient Advocate Foundation

Patient Advocate Foundation (PAF) is a national non-profit organization which provides professional case management services to Americans with chronic, life threatening and debilitating illnesses. PAF case managers serve as active liaisons between the patient and their insurer, employer and/or creditors to resolve insurance, job retention and/or debt crisis matters as they relate to their diagnosis.
421 Butler Farm Road
Hampton, VA 23666
Phone: 1-800-532-5274

Patient Information


Information for people with cancer and their families and caregivers, from the American Society of Clinical Oncology (ASCO), the voice of the world’s cancer physicians and oncology professionals.

Coping With Cancer Magazine

An easy-to-read magazine about coping with cancer.

Let’s Win

Patients and caregivers share information about new, innovative pancreatic cancer treatments and learn about the latest research breakthroughs.

Medline Plus Health Information

Provides a wealth of information from the National Library of Medicine written at the patient level.


Medscape is a website providing access to medical information for clinicians; the organization also provides continuing education for physicians and health professionals.


Information for patients and healthcare providers written by oncologists.
Abramson Cancer Center of the University of Pennsylvania
3400 Spruce Street, 2 Donner
Philadelphia, PA 19104-4283


Provides access to the clinical studies on MEDLINE and other related databases. In addition to brief abstracts from technical journals, PubMed offers frequently asked questions, news, and clinical alerts.

The Cancer Letter

Information on cancer research and drug development.

The Lancet

A weekly medical publication on a variety of topics including oncology.


CancerCare, Inc.

Services include counseling and support groups over the phone, online and in-person, educational workshops, publications and financial and co-payment assistance.
275 Seventh Avenue, 22nd Floor
New York, NY 10001
Phone: 1-800-813-4673
E-mail: [email protected]

NCI’s LiveHelp Service

Information specialists can answer questions about cancer, clinical trials, and the process of quitting smoking. LiveHelp is confidential anddoes not provide medical advice.

Pancreatic Cancer Connections

Pancreatic Cancer Connections, a partnership between the Lustgarten Foundation, Let’s Win and Inspire, is an easy-to-use, online support community where patients and their loved ones can communicate about pancreatic cancer with others on the same journey.

Travel and Housing Services

The Air Care Alliance

A nationwide association of humanitarian flying organizations. Members have safely flown over 24,000 patients to and from medical treatments.
2060 State Highway 595
Lindrith, NM 87029
Phone: 1-888-260-9707
E-mail: [email protected]

Corporate Angel Network, Inc. (CAN®)

Corporate Angel Network is the only charitable organization whose sole mission is to transport cancer patients to the hospital where they need to receive a specialized form of treatment.
Westchester County Airport
One Loop Road
White Plains, NY 10604-1215
Phone: 914-328-1313
E-mail: [email protected]

Patient AirLift Services (PALS)

Patient AirLift Services is a nonprofit organization that arranges free air transportation for individuals requiring medical diagnosis, treatment or follow-up who cannot afford or are unable to fly commercially.
PALS also arranges volunteer flights for family members of patients as compassionate missions, to ensure patients have support when they are away from home for long periods.

7110 Republic Airport, 2nd FLoor
Farmingdale, NY 11735
Phone: 1-888-818-1231
E-mail: [email protected]

Healthcare Hospitality Network

The Healthcare Hospitality Network, Inc. (HHN) is a nationwide professional association of more than 200 unique, nonprofit organizations that provide lodging and supportive services to patients and families when confronted with medical emergencies. Each facility ensures a homelike environment to persons who must travel to be with a patient or to receive necessary outpatient care.
22640 Hazel Lane
Rapid City, SD 57702
Phone: 1-800-542-9730
E-mail: [email protected]

Patient Travel Referral Program

The Patient Travel Referral program, a program of Mercy Medical Angels, provides information about all forms of charitable, long-distance medically-related transportation and provides referrals to all appropriate sources of help available in the national charitable medical transportation network.
4620 Haygood Road, Suite 1
Virginia Beach, VA 23455

Webinar / Apps


Designed by doctors, patients and caregivers, Canceraid is the number one cancer app in the U.S.,  U.K. and Australia.

Webinar by Johns Hopkins

A 30-minute webinar which provides information about surgery, chemotherapy and immunotherapy.

Registries, Screening Centers and NCI-Designated Cancer Centers

Familial Registries

Familial registries are powerful resources to gain a better understanding of pancreatic cancer. The following registries are set up to identify families in which multiple members have been diagnosed with pancreatic cancer. Researchers search for genes that may be the cause of pancreatic cancer. It is hoped that early detection methods and novel treatments will result from these efforts.

Johns Hopkins Medicine Pathology

The Sol Goldman Pancreatic Cancer Research Center
National Familial Pancreas Tumor Registry
The National Familial Pancreas Tumor Registry (NFPTR) is a research registry that was established at The Johns Hopkins Hospital.  Participation involves the completion of a questionnaire about your health history and that of your family members. A blood sample may be requested.
The Johns Hopkins Hospital
1550 Orleans St, CRB II, Room 341
Baltimore, MD 21231
Phone: 410-614-0671
Email:[email protected]

Columbia University Medical Center

Pancreatic disease cohort: A Registry and Biospecimen Bank to Better Understand Pancreatic Disease
The specific aims of this project are to create a registry, as well as a biospecimen (blood, urine, tissue, stool, or saliva samples) bank for individuals with pancreatic disease (e.g. pancreatic adenocarcinoma, pancreatitis, intraductal papillary mucinous neoplasm [IPMN], mucinous cystic neoplasm [MCN]), and pancreatic intraepithelial neoplasia (PanIN) or have been determined to be at high-risk for pancreatic cancer. It is anticipated that the knowledge derived will ultimately lead to improvements in the diagnosis, prevention, detection, and treatment of pancreatic cancer.
Columbia University
New York, NY 10032
Contact: Vilma Rosario
Phone: 212-305-6033
Email: [email protected]

Creighton University

School of Medicine
Hereditary Cancer Center
The Hereditary Cancer Center (HCC) at Creighton University conducts comprehensive research projects dealing with cancer of all anatomic sites. Its primary objective is devoted to cancer prevention resulting from identification of hereditary cancer syndromes with particular attention given to surveillance and management programs melded to the natural history of these particular hereditary disorders. The HCC places particular emphasis on the hereditary breast ovarian cancer syndrome, the familial typical multiple mole melanoma syndrome in association with pancreatic cancer and the hereditary nonpolyposis colorectal cancer syndromes, also referred to as the Lynch syndrome.
Creighton University
School of Medicine
500 California Plaza
Omaha, NE 68178
Phone: 402-280-2700

Dana-Farber Cancer Institute

Pancreatic Cancer Genes Study (PAGES)
The Pancreatic Cancer Genes Study (PAGES) is an ongoing study at Dana-Farber with the goal of advancing research into genes that make a person susceptible to pancreatic cancer.
Contact: Sapna Syngal MD, MPH
Principal Investigator
Phone: 617-632-5022
Fax: 617-632-4088
Contact: Chinedu Ukaegbu, MBBS, MPH
Project Manager
Phone: 617-632-6355
Fax: 617-632-3161

Indiana Familial Pancreatic Cancer Roster

Indiana University School of Medicine
Information is collected from families with multiple family members with pancreatic cancer or from an individual with pancreatic cancer diagnosed at a young age.
Indiana University School of Medicine
975 W. Walnut Street, #130
Indianapolis, IN 46202
Phone: 317-944-3966

The Jefferson Pancreas Tumor Registry, Thomas Jefferson University Hospital

Participants are asked to complete a detailed questionnaire and may be asked to submit a blood sample and/or cheek swab.
Jefferson Pancreas Tumor Registry Coordinator
Thomas Jefferson University Hospital
1015 Walnut Street
Curtis Building, Suite 620
Philadelphia, PA 19107
Phone: 215-955-5542
Email: [email protected]

Memorial Healthcare System

Memorial Cancer Institute at Memorial Healthcare System provides a pancreatic registry for patients that have a family history of pancreatic cancer. Genetic counseling, blood test, imaging, and endoscopy are offered to these patients. The research registry will help monitor these patients and catch these patients at an early stage.
1150 N 35th Avenue
Hollywood, FL 33021
Phone: 1-954-265-9520

Memorial Sloan-Kettering Cancer Center

Pancreatic Tumor Registry
This registry is collecting and analyzing data from people with the disease and their family members. The researchers are using this information to find out more about the genetic, environmental, and lifestyle factors that increase a person’s risk of developing pancreatic cancer.
Dr. Robert C. Kurtz
Principal Investigator
Phone: 212-639-7620
Research Assistant Phone: 646-888-8319

Pancreatic Cancer Collaborative Registry

The Pancreatic Cancer Collaborative Registry (PCCR) collects personal background information, medical, and family details, as well as dietary and environmental exposure history and a biospecimen registry from pancreatic cancer patients and their family members. One of the major goals of the PCCR is to help researchers identify what specifically causes pancreatic cancer, and possibly identify those individuals/families that are at increased risk for pancreatic as well as other cancers. Researchers may also identify those individuals who might benefit from screening measures to detect pre-cancerous changes at an earlier and potentially more treatable stage.
Contact: Michelle Desler, MS
Fred & Pamela Buffett Cancer Center
University of Nebraska Medical Center
986805 Nebraska Medical Center
Omaha, NE 68198-6805
Phone: 402-559-8885
Email: [email protected]

Oregon Health & Science University

Oregon Pancreatic Tissue Registry
The Oregon Pancreatic Tissue Registry collects information and tissue samples from people with a family history of pancreatic cancer, related syndromes or chronic pancreatitis.
Brenden-Colson Center for Pancreatic Care
Oregon Health & Science University
2730 SW Moody Ave.
Portland OR 97201-5042
Phone: 503-494-8988
Email: [email protected]

Huntsman Cancer Institute

University of Utah
Hereditary Gastrointestinal Cancer Registry
People with a personal or family history of hereditary gastrointestinal syndromes or cancers and their family members may be eligible.
Hereditary Gastrointestinal Cancer Registry
Huntsman Cancer Institute at the University of Utah
2000 Circle of Hope, Room 4529
Salt Lake City, UT 84112
Phone 801-585-1936 or toll free: 1-877-422-6860
Fax: 801-585-5763
Email: [email protected]

Screening Centers and Programs

Baylor College of Medicine

Patients meet with a pancreas specialist who will assess risk factors of pancreatic cancer, perform tests including an MRI, an endoscopic ultrasound, bloodwork and genetic counseling.
The Elkins Pancreas Center
Dan L. Duncan Comprehensive Cancer Center
6620 Main Street
13th Floor, Suite 1350
Houston, TX 77030
Phone: 713-798-2262
Toll-free: 877-PANC-CTR (877-726-2287)

Dana-Farber Cancer Institute

The Dana-Farber Cancer Genetics and Prevention Program works with patients who believe that they have a high risk for developing cancer to create a personalized program to lower that risk. Their goal is to help patients identify the steps that they can take to lower the risk of developing a gastrointestinal cancer, which may include cancer screening, genetic testing and clinical research.
Gastrointestinal Cancer Genetics and Prevention Program
MS 1068
450 Brookline Avenue
Boston, MA 02215-5450
Phone: 617-632-2178 new patients;
617-632-5022 established patients


CAPS is for those considered at high risk for pancreatic cancer due to a family history or genetic mutation. Participants are offered genetic counseling and pancreatic screening. Screenings may include a combination of endoscopic ultrasonography, MRI, and CT scans. The CAPS study is taking place at eight institutions across the country.  Contact information for each participating center can be found here.

Fox Chase Cancer Center

The Risk Assessment Program at Fox Chase Cancer Center, run by the Department of Clinical Genetics, offers education, screening and counseling to people with cancer and those who are at risk for getting many types of cancer, including gastrointestinal. Fox Chase offers Open Access Endoscopy services for referring doctors to expedite scheduling routine screening procedures.
Risk Assessment Program
Main Campus
333 Cottman Avenue
Philadelphia, PA 19111-2497
Phone: 877-627-9684

Fred Hutchinson Cancer Research Center

Fred Hutchinson Cancer Research Center runs the world’s largest population-based study examining genetic and environmental risk factors that contribute to the development of pancreatic cancer.
1100 Fairview Avenue North
Seattle, WA 98109-1024
Phone: 206-677-5000

MD Anderson Cancer Center

The Pancreatic Cancer Moonshot™ initiative includes methods to identify pancreatic cancer earlier and provide a multidisciplinary clinic for individuals at high risk of pancreatic cancer.
1515 Holcombe Blvd.
Houston, Texas 77030
Phone: 1-855-724-1365

The Froedtert & the Medical College of Wisconsin Clinical Cancer Center

Offers a specialized service for people who may be at high risk of developing pancreatic cancer due to personal or familial health factors.
Greater Midwest Pancreatic Cancer Screening Clinic
9200 W. Wisconsin Avenue
Milwaukee, WI 53226
Phone: 414-805-3666

Indiana University Hospital

The mission of the center is to promote early detection and prevent pancreatic cancer through multidisciplinary screening clinics, registries, community outreach, education and research discovery. The clinic coordinates the care, follow-up and research involving more than 1,000 patients at increased risk for pancreatic cancer and maintains a registry to monitor all patients. The IU Pancreatic Cancer Signature Center is also advancing knowledge from bench to bedside to practice and work on novel approaches for early diagnosis.
Pancreatic Cyst and Cancer Early Detection Center
550 University Boulevard
Indianapolis, IN 46202
Phone: 317-948-8358

Johns Hopkins University School of Medicine Sol Goldman Pancreatic Cancer Research Center

Both the National Familial Pancreas Tumor Registry (NFPTR) and the Multidisciplinary Pancreatic Cyst Program are programs of the Sol Goldman Pancreatic Cancer Research Center.
The NFPTR is the first familial pancreas tumor registry in the country and is the longest standing and one of the largest familial pancreatic cancer registries in the world. There are more than 5,500 families enrolled in this registry, and the participants have been part of several different studies that have helped identify and quantify the risk of pancreatic cancer in relatives. The NFPTR works with a team of clinicians and scientists with backgrounds and training in areas such as epidemiology, pathology, gastroenterology, genetics, radiology, and oncology.
The Multidisciplinary Pancreatic Cyst Program evaluates patients with known or suspected pancreatic cysts. The program provides educational materials for patients and family members; same day diagnostic testing including specialized 3D pancreatic CT scans and MRIs read by expert pancreatic radiologists; access to endoscopic ultrasound (EUS); examination of pathological slides; and surgeons experienced in the resection of pancreatic cysts.

1550 Orleans Street, CRB II
Room 341
Baltimore, MD 21231
NFPTR: 410-955-3502
Cyst Program: 410-955-5800
Email: [email protected]

Memorial Healthcare System

Memorial Cancer Institute at Memorial Healthcare System provides a pancreatic registry for patients that have a family history of pancreatic cancer. Genetic counseling, blood test, imaging, and endoscopy are offered to these patients. The research registry will help monitor these patients and catch these patients at an early stage.
1150 N 35th Avenue
Hollywood, FL 33021
Phone: 1-954-265-9520

Memorial Sloan Kettering Cancer Center

After joining MSKCC’s registry if you have a higher risk of developing pancreatic cancer based on your family history with the disease, you may be referred to a genetic counselor. Together, you can discuss possible syndromes that run in your family that may be related to your family history of cancer. You may also be offered genetic testing. Your results can help determine your individual risk of developing pancreatic cancer or other cancers. It can also help establish how often you should be screened.
Epidemiology & Biostatistics/#02-102 MSKCC Pancreatic Tumor Registry
485 Lexington Avenue, 2nd Floor
New York, NY 10017
Phone: 800-525-2225

New York-Presbyterian Hospital/Columbia University Medical Center

The Muzzi Mirza Pancreatic Cancer Prevention and Genetics Program focuses on screening, genetic testing and research into pancreatic cancer. The program seeks to develop standards for those who should be screened; study the biology of the disease; develop strategies for early detection; and raise awareness of pancreatic cancer. The Pancreatic Cyst Surveillance Program is an extension of this program and monitors patients with known or suspected pancreatic cysts.
Muzzi Mirza Pancreatic Cancer Prevention and Genetics Program
Pancreatic Cyst Surveillance Program
Herbert Irving Pavilion, 8th Floor
161 Fort Washington Avenue
New York, NY 10032
Phone: 212-305-9467

Northwell Health Pancreatic Cancer Center

At Northwell Health Pancreatic Cancer Center, our risk assessment and screening program focuses on evaluating and monitoring patients with a higher risk of developing pancreatic cancer based upon a personal history of known or suspected pancreatic cysts, an identified mutation in an inherited pancreatic cancer risk gene, or a strong family history of pancreatic cancer despite negative genetic testing. Our multidisciplinary team of experts, including surgeons, medical oncologists, gastroenterologists, radiologists and genetic counselors, offers a range of sophisticated testing for patients with a higher risk of developing pancreatic cancer based upon their specific individual risk factors. In addition, we offer a one day multidisciplinary clinic for individuals with a diagnosis of pancreatic cancer. All patients are supported by our experienced and compassionate nurse navigators who are here to help each and every patient through their journey with us, making it as easy and streamlined as possible.
Northwell Health Cancer Institute at Center for Advanced Medicine
Pancreatic Cancer Center
450 Lakeville Road
Lake Success, NY 11040
Phone: (833) 762-7327
Email: [email protected]

NYU Winthrop Hospital

Physicians in the Pancreatic Health Program screen high risk individuals, with the goal of preventing the disease from becoming malignant. The NYU Winthrop Pancreatic Cyst Surveillance Program helps determine if patients’ cysts are benign or if they require surgical removal to prevent malignancy.
Pancreatic Health Program
120 Mineola Boulevard, Suite 320
Mineola, NY 11501
Phone: 516-663-2436
Email: [email protected]

Oregon Health & Science University

CEDAR is focused on the development of technologies to help support early detection, cancer evolution and development and genetic pre-dispositions to identify high risk individuals. CEDAR is also focused on determining the underlying causes of cancer risk; preventing over-diagnosis; and developing precision therapies to either cure lethal cancers or turn them into chronic diseases.
Knight Cancer Institute
Center for Early Detection and Research (CEDAR)
3181 S.W. Sam Jackson Park Road
Portland, OR 97239-3098
Phone: 503-494-1617

NYU Langone Perlmutter Cancer Center

The genetics program at the Pancreatic Cancer Center provides risk assessments and evaluations for people with an inherited genetic predisposition for pancreatic cancer, which can be more treatable when detected early. They order tests, review the results, and discuss any necessary additional screening tests. If genetic testing determines an increased risk of pancreatic cancer, doctors at Perlmutter Cancer Center may perform annual screening tests to detect developing tumors. The center was founded and NCI-designated in 1975.
Pancreatic Cancer Center
160 East 34th Street, 9th Floor
New York, NY 10016
Phone: 212-731-5655

Robert H. Lurie Comprehensive Cancer Center of Northwestern University

Northwestern University’s Gastrointestinal Cancer Prevention Clinic focuses on the prevention, early detection and diagnosis of gastrointestinal cancers, including pancreatic cancer. Services offered include genetic testing, screening, therapeutic endoscopy, imaging, gastrointestinal surgery, and psychological and nutrition counseling. The clinic also manages a High Risk Gastrointestinal Cancer Registry that gathers information about patients and their relatives who have had gastrointestinal cancers or are at risk of developing gastrointestinal cancer.
Gastrointestinal Cancer Prevention Clinic
Galter Pavilion
675 North St. Clair Street, 17th Floor
Chicago, IL 60611
Phone: 312-695-5620

University of California – Los Angeles

The Agi Hirshberg Center for Pancreatic Diseases combines experts from across disciplines who together review each patient’s case and test results and map out a treatment plan.
UCLA Agi Hirshberg Center for Pancreatic Diseases
10833 Le Conte Avenue, 72-215 CHS
Los Angeles, CA 90095-6904
Phone: 310-206-6889

University of California – San Francisco

The UCSF Pancreas Center’s mission is to advance the care of patients with pancreatic diseases through prevention, early detection, individual treatment and research. The center conducts large population-based, case-control studies of pancreatic cancer. Its researchers in Epidemiology and Biostatistics lead laboratory and clinic-based studies of the molecular epidemiology of pancreatic cancer.
Helen Diller Family Comprehensive Cancer Center
Pancreas Center
Ron Conway Family Gateway Medical Building
1825 4th Street, Fourth Floor
San Francisco, CA 94158
Phone: 415-353-7390

University of Chicago Medicine

The Pancreatic Cancer Early Detection Clinic offers sophisticated screening and diagnostic tools for people who are at risk for developing pancreatic cancer through a collaborative team approach that includes experts in gastrointestinal interventional endoscopy, pancreatic surgery, radiology and pathology, and genetics, as well as nurses, laboratory technicians and genetic counselors. As a team, these experts develop screening and treatment plans to fit each patient’s specific needs and suggested screening procedures for relatives who may also be at risk.
Pancreatic Cancer Early Detection Clinic
5841 S. Maryland Avenue
Chicago, IL 60637
Phone: 1-855-702-8222

University of Michigan Health System

The Cancer Genetics Clinic evaluates people with a personal or family history of cancers that may have genetic links and provides advice on the best way to manage the patients’ healthcare.
The University of Michigan Pancreatic Cancer Center is also using an interdisciplinary approach to advance earlier detection procedures. The team is utilizing genetic testing to determine risk, with the goal of increasing the early detection of risk to 100 percent accuracy.

Cancer Genetics Clinic
University of Michigan Comprehensive Cancer Center
Clinic is situated directly behind U-M Comprehensive Cancer Center
Med Inn Building, Floor 3, Reception B
1500 East Medical Center Drive
CCGC 6-303
Ann Arbor, MI 48109-0944
Phone: 734-763-2532
Email: [email protected]

University of Pennsylvania Abramson Cancer Center

The Gastrointestinal Cancer Risk Evaluation Program (GI-CREP) evaluates people who are at an increased risk of developing gastrointestinal cancer. Patients undergo a comprehensive evaluation and genetic testing when appropriate. An expert assesses the patients’ gastrointestinal risk and coordinates a plan for managing the risk of developing pancreatic cancer.
Gastrointestinal Cancer Risk Evaluation Program
Abramson Cancer Center (GI-CREP)
3535 Market Street, Suite 750
Philadelphia, PA 19104
Phone: 215-349-8222

University of Pittsburgh Medical Center

Screenings are conducted on people who have major risk factors, including a family history of pancreatic cancer, so that early intervention can lead to more timely treatment.
Hereditary GI Tumor Program
Shadyside Medical Building
5200 Centre Avenue, Suite 409
Pittsburgh, PA 15232
Phone: 412-647-2811

University of Texas Southwestern Medical Center

The Pancreatic Cancer Prevention Program provides patients with care from a multidisciplinary team that develops a comprehensive plan for each patient in a single visit.
Harold C. Simmons Comprehensive Cancer Center
Pancreatic Cancer Prevention Program
5323 Harry Hines Boulevard
Dallas, TX 75390
Phone: 214-645-8300 or 817-882-2700

University of Virginia Health System Emily Couric Clinical Cancer Center

UVA’s High Risk Pancreatic Cancer Clinic screens and monitors patients who have an increased risk for pancreatic cancer. The center also has a pancreatic cyst clinic that provides testing to monitor cysts and determine if they are benign or if they could potentially cause cancer.
High Risk Pancreatic Cancer Clinic
1240 Lee Street
Charlottesville, VA 22903
Phone: 434-243-5233
Email: [email protected]

University of Washington Division of Gastroenterology

Familial Pancreatic Cancer & Surveillance

Gastroenterology Clinic at Harborview

This center is for patients with a strong family history of pancreatic cancer who are interested in surveillance.
Maleng Building, 8th Floor
410 Ninth Avenue
Seattle, WA 98104
Phone: 1-877-520-5000

Vanderbilt-Ingram Cancer Center

The Hereditary Cancer Clinic evaluates and provides counseling to patients with an increased risk of cancer due to hereditary factors. The clinic is part of Vanderbilt’s Clinical and Translational Hereditary Cancer Program, which provides research, patient care and education on hereditary cancer genetics.
Hereditary Cancer Clinic
The Village at Vanderbilt
1500 21st Avenue South, Suite 2500
Nashville, TN 37232
Phone: 615-343-7400

Yale School of Medicine

Consideration of screening is recommended for individuals with a significantly increased risk to develop pancreatic cancer beginning at age 50 or 10 years younger than the youngest relative with pancreatic cancer or at age 30 for individuals with Peutz-Jeghers Syndrome.
Pancreas Disease Program
333 Cedar Street
New Haven, CT 06510

National Cancer Institute Designated Cancer Centers

The National Cancer Institute (NCI) is a federal agency for cancer research and training. The NCI Cancer Centers are recognized for scientific leadership and resources. The Comprehensive Cancer Center designation is reserved for those centers with the highest achievements in cancer research, clinical care, education, and community contributions. Studies show that being treated at NCI-designated Comprehensive Cancer Centers leads to better survival and recovery rates due to the level of care, diverse oncology disciplines, subspecialty expertise, and multidisciplinary teams as well as access to clinical trials.

The NCI recognizes 2 types of centers:

* Cancer Centers
** Comprehensive Cancer Centers

Each type of center has special characteristics and capabilities for organizing new programs of research that can take advantage of important new findings and address timely research questions. It is important to note, however, that the terms Comprehensive Cancer Center and Cancer Center do not denote a difference in the quality of care provided to patients.

A list of these centers can also be found at or by calling 1-800-4-CANCER.


**University of Alabama at Birmingham Comprehensive Cancer Center
Main: 205- 975-8222
Toll Free: 1-800-822-0933 (1-800-UAB-0933)


**Arizona Cancer Center, University of Arizona
Phone:  1-800-524-5928; 520-694-2873 (694-CURE)


**City of Hope National Medical Center
Beckman Research Institute
Phone: 626-256-4673 (626-256-HOPE)
New Patient Services: 1-800-826-4673

*Salk Institute Cancer Center
Salk Institute for Biological Studies
Phone: 858-453-4100

*Sanford Burnham Prebys Medical Discovery Institute
Phone: 858-646-3100

**UC San Diego Moores Cancer Center
University of California at San Diego
Appointments: 858-822-6100
General Information: 1-866-773-2703

**Jonsson Comprehensive Cancer Center
University of California Los Angeles, CA
Administrative Office: 310-825-5268
UCLA Cancer Hotline: 1-888-662-8252

**University of Southern California
Norris Comprehensive Cancer Center
General Information: 323-865-3000
Phone: 1-800-872-2273 (1-800-USC-CARE)

**Chao Family Comprehensive Cancer Center
University of California at Irvine
Appointments: 714-456-8000
Physician Referral Service: 1-877-824-3627

*Stanford Cancer Institute
Stanford University
Referral Center: 650-498-6000
Phone: 1-877-668-7535

**UC Davis Comprehensive Cancer Center
University of California at Davis
New Patient Referral Office: 916-703-5210
General Information: 916-734-5959

**UCSF Helen Diller Family Comprehensive Cancer Center
University of California at San Francisco
Appointments & Physician Referral Service: 1-888-689-8273
International Inquiries: 415-353-8489


**University of Colorado Cancer Center
Adult Cancer Care: 720-848-0300


**Yale Cancer Center
Yale University School of Medicine
Patient Care: 203-785-4191
Toll Free: 1-866-925-3226


**Georgetown Lombardi Comprehensive Cancer Center
Georgetown University
Appointments: 202-444-2223
CancerLine: 202-444-4000


**Moffitt Cancer Center
Phone: 813-745-4673 (813-745-HOPE)
New Patient/Physician Referral: 1-888-860-2778


*Winship Cancer Institute of Emory University
Phone: 404-778-1900


* University of Hawaii Cancer Center
Phone: 808-586-3010


**University of Chicago Cancer
Phone: 1-855-702-8222

**Robert H. Lurie Comprehensive Cancer Center
Northwestern University
Phone: 312-695-0990
Appointments: 1-866-587-4322 (1-866-LURIE-CC)


*Indiana University Melvin and Bren Simon Cancer Center
Phone: 317-944-5000
Appointments & Referrals: 317-944-0920


**Holden Comprehensive Cancer Center
University of Iowa
Appointments & Referrals: 319-384-8442
Cancer Information Service: 1-800-237-1225


*University of Kansas Cancer Center
Phone: 913-588-1227 or 844-323-1227


*Markey Cancer Center
University of Kentucky
Phone: 859-257-4500
Toll Free: 1-866-340-4488


**Sidney Kimmel Comprehensive Cancer Center
Johns Hopkins University
Phone: 410-955-5222
Appointments & Referral: 410-955-8964

**Marlene and Stewart Greenebaum Comprehensive Cancer Center
University of Maryland
Main and New Appointments: 410-328-7904
Toll Free: 1-800-888-8823


**Dana-Farber/Harvard Cancer Center
Dana-Farber Cancer Institute
Phone: 617-632-3000
Spanish Speakers: 617-632-3673

*David H. Koch Institute for Integrative Cancer Research at MIT
Massachusetts Institute of Technology
Phone: 617-253-6403


**University of Michigan Comprehensive Cancer Center
University of Michigan
Cancer Answer Line: 1-800-865-1125

**The Barbara Ann Karmanos Cancer Institute
Wayne State University School of Medicine
Appointments: 1-800-527-6266 (1-800-KARMANOS)


**Masonic Cancer Center
University of Minnesota Cancer Center
Cancer Information Line: 612-624-2620
Patient Appointments: 612-672-7422
IA, MN, ND, SD, WI: 1-888-226-2376

**Mayo Clinic Cancer Center
Phone: 507- 284-2511


**Alvin J. Siteman Cancer Center
Washington University School of Medicine and Barnes-Jewish Hospital
Phone: 314-747-7222
Toll Free: 1-800-600-3606


*Fred and Pamela Buffet Cancer Center
Nebraska Medicine and the University of Nebraska Medical Center
Care Center: 402-559-6500
Medical Call Center – Physician & Service Referral: 402-559-5600


**Norris Cotton Cancer Center
Dartmouth-Hitchcock Medical Center
Administration: 603-653-9000
Cancer Help Line: 1-800-639-6918


**Rutgers Cancer Institute of New Jersey
Rutgers Biomedical and Health Sciences
Phone: 732-235-2465


**University of New Mexico Comprehensive Cancer Center
Phone: 505-272-4946
In New Mexico: 1-800-432-6806


*Albert Einstein Cancer Center
Albert Einstein College of Medicine
Phone: 718-862-8840

**Roswell Park Comprehensive Cancer Center
Phone: 716-845-2300

*Laura and Isaac Perlmutter Cancer Center at NYU Langone Cancer Center
Phone: 212-263-3276

**Memorial Sloan-Kettering Cancer Center
Phone: 212-639-2000
Patients: 212-639-4900
Toll Free: 1-888-675-7722

**Herbert Irving Comprehensive Cancer Center
Columbia University
Phone: 212-305-2500
24 Hour Hotline: 1-877-697-9355

*The Tisch Cancer Institute
Mount Sinai Cancer Center
New York, NY
Administration: 212-659-5600
Patient Information: 212-241-6756


**UNC Lineberger Comprehensive Cancer Center
University of North Carolina at Chapel Hill
Phone: 919-966-3036
Appointment information: 1-866-869-1856

**Duke Cancer Institute
Duke University Medical Center
Consultation and Referral Service: 1-888-275-3853; 1-888-ASK-DUKE

**Comprehensive Cancer Center of Wake Forest University
Phone: 336-716-7971
Appointments: 336-716-WAKE
Toll Free: 888-716-WAKE


**Case Comprehensive Cancer Center
Case Western Reserve University
Phone: 216-368-1122

**The James
Ohio State University Comprehensive Cancer Center
Phone: 216-368-1122
Patient Information Desk: 614-293-3300


*Stephenson Cancer Center
University of Oklahoma
Patient Care: 405-271-1112
Toll-Free: 1 800-750-2273


*Knight Cancer Institute
Oregon Health & Science University
Cancer Institute: 503-494-1617
Health Care Services/OHSU Switchboard: 503-494-8311
Phone: 1-888-222-6478


**Abramson Cancer Center
University of Pennsylvania
Phone: 215-615-5858

*The Wistar Institute Cancer Center
The Wistar Institute
Phone: 215-898-3700

**Fox Chase Cancer CenterTemple Health
New patient appointments: 215-728-2570
Cancer information line: 1-888-369-2427

*Sidney Kimmel Cancer Center
Thomas Jefferson University
Phone: 215-503-5692

**UPMC Hillman Cancer Center
University of Pittsburgh Medical Center
Phone: 412-623-3205


*Hollings Cancer Center
Medical University of South Carolina
Phone: 843-792-0700
Health Connection Line: 1-800-424-6872 (1-800-424-MUSC)


**Vanderbilt-Ingram Cancer Center
Vanderbilt University
Phone: 615-936-8422
Toll free: 1-877-936-8422


**Dan L. Duncan Comprehensive Cancer Center
Baylor College of Medicine
Phone: 713-798-1354

**The University of Texas MD Anderson Cancer Center
Phone: 713-792-6161
Toll free: 1-877-632-6789

*Mays Cancer Center
University of Texas Health Science Center at San Antonio
Phone: 210-450-1000
Cancer information line: 1-800-340-2872

**Harold C. Simmons Comprehensive Cancer Center
University of Texas Southwestern Medical Center
Phone: 214-645-HOPE (4673)
Toll-Free: 866-460-HOPE (4673)


*Huntsman Cancer Institute
University of Utah
Phone: 801-585-0303
HCI Main: 1-877-585-0303


*University of Virginia Cancer Center
University of Virginia, Health Sciences Center
Phone: 434-924-3627
Toll Free: 1-800-223-9173

*Massey Cancer Center
Virginia Commonwealth University
Phone: 804-828-0450
New Patients: 804-828-5116


**Fred Hutchinson/University of Washington Cancer Consortium
Fred Hutchinson Cancer Research Center
New patients/intake: 206-288-1024
Phone: 206-288-7222


**Carbone Cancer Center
University of Wisconsin
Phone: 608-263-8600
Cancer Connect: 1-800-622-8922

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